In INDACEA we believe that we all benefit from medical research even if there is no apparent direct relationship with the condition or disease that interests us as individuals. It can be the case that research done for certain diseases will give results that can benefit others despite being very different. We think of it as having a ripple effect, where research for one disease gives good results for research into a different one, which, in turn, can benefit a different disease, and so on.
- “What about my case?”
One of the most common questions asked of us is “what about my case?” It’s often asked by people living with a rare or uncommon illness, and it’s completely understandable.
There is an easy, simple answer to that:
We are also taking care of your disease because it’s included in one of the categories together with other similar diseases.
- “Yes, but I only want to contribute towards my own disease”
Again, a perfectly understandable initial feeling. Our founder also lives with a rare disease, with no cure at present, and his philosophy that all of people living a rare disease should unite and walk together in order to achieve progress, via medical research, led to the creation of INDACEA. It is a philosophy that remains at the heart of INDACEA. To show this a bit more clearly, have a look at this video.
As the video shows, by investigating particular diseases, researchers can find things that help other conditions.
- “You see? I’m right! They should only research our rare disease”
Simply focusing on investigating rare diseases limits the possibilities of useful results. For example, some researchers believe that possible future treatments for certain rare neurodegenerative diseases will actually come from treatments developed for more common cancers.
Absolutely. Some researchers think that one of the mutated genes that can cause FSHD2 can also be a factor in cancer. Therefore, research into FSHD2 might help cancer and, in turn, by investigating that gene’s affect on cancers could also lead to results that can help FSHD2 research too.
- “I didn’t know that”
In fact, we would like to add something to the video: investigating any disease, not just the rare ones, gives and will give benefits to research into other diseases.