INDACEA wants to go right to the root cause: yes, that’s right, fight against the origin of the disease. We want to actively fight against the very origin of the disease and we have no problem in saying it. We want to solve the problem at its roots, at its source. And that’s why we want to raise funds for medical research, the only way to carry this fight forward.
INDACEA is a nonprofit organization created to promote medical research. It’s only aim is to speed the discovery of new treatments (and diagnosis) of any disease or injury.
That doesn’t mean that patient organizations are less needed. We are convinced they are as important as INDACEA is, and that’s why we support and applaud their work. We believe INDACEA and patient organizations are complementary to each other and, by two equally important but different approaches, we all help people living with a disease.
This is how we like to explain it: imagine a building with structural problems. If nothing is done about it, the building will collapse sooner or later. Before this happens, the first thing to be done is to put up a scaffold and netting to shore it up. This will avoid the collapse of the building temporarily but will not solve the problem long-term. Now imagine that as well as shoring up the building you go to the roots of the problem, to the foundations. This is a far longer and involved process, needing specialist knowledge, and it’s a constant fight against time to complete the work before the building collapses.
Nowadays, most nonprofit organizations dealing with health issues focus on improving the quality of life and medical care of people affected and their families (they shore up the building and buy extra time). It’s true that they don’t help the patient to get cured, but without these patient organizations medical research could arrive too late.
What’s more important, the quality of life of those affected or medical research into finding a cure? The answer is easy: both are equally important.
What’s more urgent? We think it’s important to improve the quality of life of patients but that should not neglect searching for a treatment. The ultimate improvement to quality of life is by curing the disease and preventing it in the first place.
One thing is certain: medical research will eventually find a treatment. The right question is: when will that be? It is a question of time and the later that research starts (due to lack of resources, for example), the later the treatment will arrive.