The concept of INDACEA arose quite some time ago, and can be traced back to 2006 when I decided to join a patient organization (a non-profit association of people affected by a certain illness or disease), dedicated to the chronic neuromuscular disease that I suffer from. I became more involved with the association, being responsible for the association’s accounts for several years, and eventually I became a member of its board of directors.
Thanks to this association, I made extensive contacts with doctors and researchers and I’ve been able to gather great amounts of information regarding both their work and the context of their work. In general, these patient organizations provide significant support to people affected by specific diseases or illnesses. They also do important work in informing the rest of the population about their particular disease and the difficulties encountered by those who suffer from it; but most importantly, these associations focus on improving the quality of life of the sufferers. Despite the limited resources they receive, they do a very good job.
There is no doubt they would like to do more and expand their work to reach out to all areas but that’s impossible. One of those areas would be raising funds for medical research. That idea first occurred to me and lodged itself in the back of my mind eight years ago when I joined the association.
Approximately three years ago, a member of my family (who now collaborates with this project) made significant efforts to boost a foundation (Teaming). This foundation consisted of an online platform in which individuals allocate one euro per month to finance social projects (for things such as the provision of treatment for an individual; providing food to people who have no resources; or even to open a kennel for sick or abandoned dogs).
That was when all the pieces began falling into place for me. Why not combine something as specific as belonging to a patient organization with an online platform open to anyone interested? Today, patient organizations play a very important (and vital) role by informing, defending and supporting the day-to-day lives of those affected by diseases, and the families and friends around them. Why not go one step further? Why not address the root causes? Why not invest in medical research? That was when the seed that was sown in 2006 began to germinate and grow into what INDACEA is today. Those were the origins of INDACEA.
The good work has already begun, and with your help it will continue and grow to give more help, and hope, to more and more suffers; to their families, to their carers, and to those working to alleviate their symptoms and find a cure for their illnesses.
Why not create a non-profit organization to fund medical research?
The idea of INDACEA is a simple one: anyone interested can contribute with a small amount (minimum €5 Euros per month) to the research category or categories that is of personal interest to them. Let’s imagine that, in principle, you have a personal interest in several diseases like, for example: psoriasis (because your partner suffers from it); glaucoma (because you’ve been told that your elderly mum, could end up suffering from it); and Ebola (because you have seen a lot about it in the news recently).
You can decide whether your contribution of €5/month (or more) goes to only one category (for example the category of “Diseases of the Genitourinary System, Skin and Subcutaneous Tissue”, because of your partner’s disease) or if it is to be divided among the three categories you are interested in (which would mean adding the categories of “Eye, Otolaryngological and Dental Diseases”, because of your mum’s disease, and “Infectious and Communicable Diseases”, because you are concerned about global pandemics).
In order to clearly show you where your money goes, each category will show the medical research projects that are awaiting funding at that moment. Our expert committee will evaluate the feasibility of the research projects included in each of the groups and you’ll be the one deciding which will be the next one(s) to receive funding. You’ll find many more answers in the “+ Info” section of this web site.
Fdo. Jerónimo Torralba
Founder and President of INDACEA