La idea nació hace bastante tiempo. El inicio podría situarse en 2006 cuando, el que escribe, tras varios años teniendo conocimiento de una enfermedad crónica que padece, decidió inscribirse en una asociación de afectados sin ánimo de lucro de afectados por una enfermedad parecida a la suya.

Se dio cuenta de que las organizaciones existentes hacían una gran (y vital) labor ofreciendo información, defendiendo y apoyando el día a día de los afectados y sus allegados, pero ¿por qué no dar un paso más?, ¿por qué no buscar la solución desde su raíz?

¿Por qué no crear una organización sin ánimo de lucro para la financiación de la investigación médica? 

leer más

Además de las tareas propias del cargo de Presidente, soy quien realiza las labores de administración de la asociación. También soy “el que escribe” en el blog y redes sociales.

Además de piloto, tengo la licenciatura en Económicas, la de Administración y Dirección de Empresas y varios años de experiencia en administración (Linked in).

Si has leído el enlace de antes, seguramente ya te lo imaginas, pero esta es mi forma de pensar:

“Lucha, pelea, da el máximo. Es lo mínimo que puedes hacer”

The concept of INDACEA arose quite some time ago, and can be traced back to 2006 when I decided to join a patient organization (a non-profit association of people affected by a certain illness or disease), dedicated to the chronic neuromuscular disease that I suffer from. I became more involved with the association, being responsible for the association’s accounts for several years, and eventually I became a member of its board of directors.

Thanks to this association, I made extensive contacts with doctors and researchers and I’ve been able to gather great amounts of information regarding both their work and the context of their work. In general, these patient organizations provide significant support to people affected by specific diseases or illnesses. They also do important work in informing the rest of the population about their particular disease and the difficulties encountered by those who suffer from it; but most importantly, these associations focus on improving the quality of life of the sufferers. Despite the limited resources they receive, they do a very good job.

There is no doubt they would like to do more and expand their work to reach out to all areas but that’s impossible. One of those areas would be raising funds for medical research. That idea first occurred to me and lodged itself in the back of my mind eight years ago when I joined the association.

Approximately three years ago, a member of my family (who now collaborates with this project) made significant efforts to boost a foundation (Teaming). This foundation consisted of an online platform in which individuals allocate one euro per month to finance social projects (for things such as the provision of treatment for an individual; providing food to people who have no resources; or even to open a kennel for sick or abandoned dogs).  

That was when all the pieces began falling into place for me. Why not combine something as specific as belonging to a patient organization with an online platform open to anyone interested? Today, patient organizations play a very important (and vital) role by informing, defending and supporting the day-to-day lives of those affected by diseases, and the families and friends around them. Why not go one step further? Why not address the root causes? Why not invest in medical research? That was when the seed that was sown in 2006 began to germinate and grow into what INDACEA is today. Those were the origins of INDACEA.

The good work has already begun, and with your help it will continue and grow to give more help, and hope, to more and more suffers; to their families, to their carers, and to those working to alleviate their symptoms and find a cure for their illnesses.

Jerónimo Torralba

Founder and President of INDACEA